Kalfos ry is a Finnish patient organisation focusing on X-linked hypophosphatemia (XLH) and other rare metabolic disorders that affect bone mineralisation. The organisation aims to share information about the disorder, treatment and offer emotional and practical support to patients or their families that are affected by XLH.

Kalfos was founded and registered in 2005. It is a small organisation that is run by volunteers. We hope that in the future we are able to grow as a group and host more educational events and annual XLH-family days. We aim to help people get access to best possible treatment available.

Kalfos is a member of the Finnish Association of People with Physical Disabilities, which is an umbrella organisation. Finnish Association of People with Physical Disabilities has a Rare Disability Unit. The Rare Disability Unit offers information and support for people with a rare disability as well as to their families. Kalfos ry is one of the organisations that are in the rare disability unit.

Board members: 

Anu

Haverinen

anu.haverinen1@gmail.com

+358 40 774 7793

President

Kia

Pietiläinen

kia.pietilainen@gmail.com

 

Vice-President

Kiti

Lähteenoja

kiti.lahteenoja@kolumbus.fi

+358 40 583 5663

Secretary

Elina

Suni

elina.suni@luukku.com

 

Treasurer/Member coordinator

Ira

Alanko

ira.alanko@gmail.com

 

member

Tia

Haverinen

tia.haverinen@gmail.com

 

deputy member

Heidi

Lähteenoja

heidiw4@icloud.com

 

deputy member

 

 

 

 

 

Contact information:

Post address:
Kalfos ry
Anu Haverinen
Tahtitie 13
01390 Vantaa

kalfosry [at] gmail.com

 

 

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